Since my last post, dd2 was in the hospital for 5 days and recovered quite nicely. Currently she is weaning off of prednisone and is starting to get some of her previous symptoms back. She had one day of being pain-free in her abdomen, but now that has returned as well. Since last night she got a virus that her dd3 has been fighting so that is muddying the water with more joint pain, fever and sore throat. If her symptoms return, she will have to go on the stronger Crohn's med.
This week, dd2 saw the rheumatologist. He feels she has hypermobility syndrome. Reading about this syndrome makes a lot of her symptoms make sense. It can be caused by a genetic defect that I think may run in our family called Ehler-Danlos Syndrome. I see features in all three of our girls. This has made me start looking into dd1's symptoms and now I have some suspicion that she may have something like dysautonomia. It is a symptom of Ehler-Danlos too.
Ds turned 9 last month on the 10th. We took a couple of his buddies to a water park at a YMCA after church. They had a good time.
|Josiah is in the middle of both pics. We went for pizza afterwards.|