Sunday, November 8, 2015

Daybook Entry

For Today... November 8, 2015

Outside my window...  the sun is shining, the air is cool.  I'm loving our beautiful fall.

I am thinking...  if something doesn't work soon in improving my daughter's health, I am gonna go crazy.

I am thankful...  for the good weather, good kids and good friends.

In the kitchen...  yummy pumpkin chocolate chip muffins.

I am wearing...  jammies.

I am creating...  nothing.

I am wondering...  how we will ever get Pumpkin better.

I am reading...  The School for Good and Evil and listening to Gone with the Wind on audiobook.

I am hoping...  the GI docs will help us move on to a medication that works better for my daughter's Crohn's disease.

I am looking forward to...  heaven.

Around the house...  my two girls are sick, and I have no motivation to clean or cook.  I'm overwhelmed with Pumpkin's health issues.

One of my favorite things...  a beautiful, crisp, lazy fall day.

Highlights from this past week...  I'm working two days a week now at Ready Care in Sterling.  Little Buddy had a basketball game yesterday morning, and did a fabulous job playing in a small ensemble in the afternoon - A Theme from Jurassic Park.

A few plans for the next week...  playing things one day at a time, hoping Bunnies doesn't get too sick.  I'm not sure I can handle any more health issues.

Friday, August 28, 2015

Summer Happenings and New School Year

Time for an update.  Sorry I left you all on such a downer post.
Jaedyn, Josiah, Ciara and Eliana

We had a fairly good summer.  Once we got past a few weeks of mugginess, the weather was great.

I have a garden that isn't the best, but it has been fun and I'm learning.  It sat fallow for the past couple years before we moved here.  Cucumbers, carrots, melons have done well.  Most of my tomatoes didn't do well.  A few cherry tomatoes only.  One green pepper plant survived.  On my deck I have (or had) spinach, lettuce, oregano, basil, two cherry tomato plants, which all did well.  I used bags of garden soil laying on sides with squares cut out for the plants to grow.  I've just replanted hoping for a fall crop.  In the garden I just planted a bunch of beets, broccoli and lettuce.  I have some potato starters up here on the deck but fear I started too late...  Lastly, snow peas did well in the flower garden, that is, until the bunnies found them.  :(.  I worked as camp "nurse" a couple of weeks too.

Elli in orange with her flute at the spring concert

Elli went to two camps here at Menno Haven, participated in the summer band program, and took swimming lessons.  She loves the water and swam for hours here at the pool.  Elli's flute has improved a lot.  Her attitude towards schoolwork and being helpful around the house has really improved also.  Now that she has started sixth grade, I can see a big difference in how she comes home and gets started with her schoolwork and music practice.  It really delights me.  This year she gets to do choir, and is hoping to be asked to be part of an early morning ensemble, but I'm not sure if she's quite ready for that yet.  We'll see.
Josiah performed at the Maud Powell Arts Festival this month.
Josiah went to one camp here as he is only 8.  He helped with the garden and both younger children participated in a biweekly junior master gardener program.  He took swimming lessons and has progressed to jumping off the diving board and swimming in the deep end.
He has continued with his violin through the summer and especially enjoyed doing group lessons.

Jaedyn had a rocky summer.  She started out working the first 5-6 weeks in the kitchen at camp.  However, the doctors kept asking for her to get a bunch of tests done and she had so many appointments, then the work load and heat were tearing up her guts.  To top it all off, her left leg started swelling up.  Ultimately, we discovered that she has primary lymphedema.  Now she has to wear a hip high compression stocking every day for the rest of her life.  She never seems to get a break.  Her boss told her to take a week off when her leg got bad, but then never let her return.  Later in the summer, she started doing housekeeping with another lady at the camp, and that seemed a much better fit.  She earned enough to buy herself a laptop computer.  In August we took her to Wisconsin for Camp Oasis.  She loved it.  Unfortunately, she started having night seizures again and had to come home a day early.  This was a real blow after everything else that happened this summer.

Jaedyn and Ciara are finishing their first week back to school.  Both teen girls decided to not go to public school and are happily engaged at their former private school.  I'm really happy about this.

Ciara on left and Jaedyn in yellow at their spring banquet for school.  Pictured here with friends Elisabeth Porter and Ivy Brown.
Ciara worked doing housekeeping and gardening with a friend this summer.  She has started medicine for her anxiety and went to counseling all summer.  She is in a much better place now emotionally, and was actually excited about starting school as a senior this year.  We're doing college shopping now.  She has another ACT in October, and we'll go to Kansas to visit Bethel College in October too.  Oh, and we put in the requisite 50+ hours of driving so she will soon get her driver's license!
At the St Louis Zoo in the heat in July
Tim has worked at Camp Menno Haven for a full year now.  The summer was especially challenging for him as he doesn't like to act the role of boss or to have to confront negative behavior.  He had two full time summer staff this year, but he had to let one go.  He is pretty tired now and is happy for a break in the schedule.  I think he'll be glad when he can shut down the pool after labor day.  It is a lot of work.

Monday, March 30, 2015

Health matters, I suppose.

It's time for my weekly Daybook Entry, but I suppose I'm not really in the mood.  I'm frustrated.

This past week we officially ended our whole 30 strict plan.  On Tuesday we reintroduced legumes with peanut butter and with beans in the chili.  One daughter and I had diarrhea.  Not sure if it was related.  On Friday we reintroduced gluten-free flour.  This really sent me for a loop.  I felt in a fog and drunk most of the day and had to sleep it off.  I was surprised.  Sunday I slept a good portion of the day as well - exhausted.  I seem to only get good days every other day...  I should be feeling great.

Overall I've lost 22 lbs and my clothes fit well again.  Some of my jeans are too big.  If I stay on plan, my thinking is clear, when I'm not tired.  Taking Lifelong Vitality supplements from DoTerra really help with my clear thinking and energy, but I'm almost out.  I won't have more until next week ��.  It is frustrating to feel like I have to stay on this strict diet or feel poorly.  I guess I should be grateful that I can feel better by eating on plan, but I really am tired of having to do so much cooking!  I want my lifestyle to be more convenient - to not have to plan every meal ahead of time!

In spite of all this hard work, Jaedyn has not gained any more weight and is still sick frequently - daily.  Eliana is sick once a week too.  This stresses me out - and perhaps that is part of me being exhausted and foggy-brained.

Regarding Jaedyn, she had her colonoscopy last week.  She sees her GI doc for follow-up on Thursday.  She hasn't gained weight - lost two pounds.  She sees a new pediatrician next week.  I could not put her in with the doc who has 30-40 patients a day.  He did a very weak well-child exam on Josiah last week.  No way!  Problem is, I will have to take her to Peoria to get in with a pediatrician!  Such is my life.  No wonder I can't see myself going back to work!

I still haven't figured out what to do about school for her.  I guess we just try the public high school.  I wish life was easier, fair and encouraging ��.

Saturday, March 21, 2015

Daybook Entry

For Today... March 21, 2015

Outside my window...  the sun is shining, the air is warm, the frogs and birds are chirping.  Yesterday I saw a couple of robins!  I put up some hummingbird feeders, but I'm probably a couple weeks early, at least...  Wishful thinking!

I am thinking...  we enrolled the girls into the public high school for the fall.  It was a real blow to all of us that they won't take any of the private schooling credits that they did this year and they will be set back a year.  It is crazy that they have to repeat classes that they got As in, but overall I think it will be a good move.  My oldest daughter would have graduated next year, but she really wants a public high school experience more than she wants to be done with high school.  I don't think she is quite ready to face real life in a year anyway, so this is a good move for her.  My second daughter already got an extra year when she was five because she wasn't ready to start school yet, so this was way disappointing for her.  I think it will be good for her to have the extra resources a public high school can offer, but I'm sad for her that her hard earned As and Bs this year won't mean anything and that she will turn 20 just before she graduates.  I am still deliberating this for her.

I am thankful... for the nice weather and for a week without any major illness in the family.  Even my in-laws had a good week health wise.

In the kitchen...  we made special crepes this morning with apple compote and blueberry compote, almond butter and bananas.  Yummy!  Last night we welcomed in the Sabbath with a fancy table, meatballs and veggies.

I am wearing...  blue jeans and a light green family reunion t-shirt.

I am creating...  a bird-attractive area around my back deck and in my front yard.  I put up new feeders this week and bird baths in the front and back.

I am wondering...  how to fix my daughter's dress for her play next week.  The back doesn't close and so I will have to sew in some material so that her back doesn't show.

I am reading...  I finished Skellag and started Brisinger on audiobook.

I am hoping...  the GI docs will help us move on quickly to a medication that works better for my daughter's Crohn's disease.  She had scopes done this week on Wednesday.  Her next appointment is April 2.

I am looking forward to...  more green things springing up, seeing my girls perform in their plays, riding bikes with my kiddos.

Around the house...  my 10 year old daughter is reading on my bed, preparing for a book report about Pocahontas.  My son, 8 years, is dealing up Skip-Bo for us to play when I am done.  My 15 year old daughter is knitting in her room.  My 16 year old daughter is in her room doing something with writing or drawing, I imagine.  My husband is cleaning the garage :).

One of my favorite things...  a clean house on Saturday and nice weather to bicycle with!

Highlights from this past week...  We took 10 yo daughter to a new doctor to establish care on Monday.  On Tuesday I helped my 15 year old do a clean out for her scopes on Wednesday.  On Thursday I went grocery shopping.  On Friday I got to stay home and clean house, then take my son to the eye doctor for a school mandated checkup.  We found that he couldn't see certain shades of green and that he has a mild astigmatism, but he doesn't need any glasses.

A few plans for the next week...  Church on Sunday, prepare for Passover and week of unleavened bread next week, appointment for our son on Thursday at above-mentioned doctor.  Hopefully I can get the taxes done!

Thursday, March 12, 2015

My life perspective today
FOR TODAY...  March 12, 2015
Outside my window...  the sun is shining and the snow is almost gone!  It will be in the upper 50's today - the warmest it's been this year.  Monday is supposed to get up to 68!
I am thinking...  about my daughter's struggle with school and her feelings of inadequacy.
I am thankful... for my new computer!
In the kitchen...  I've come into a rhythm.  I've been doing a Whole30 program with the entire family and we are halfway there!  It is going much better than I had anticipated.
I am wearing... jeans and a long-sleeved brown and orange sweater.
I am creating...  organization out of chaos, a healthy family, self-esteem in my teens.
I am wondering... whether the changes we are anticipating for my daughter's medical regimen will make a big difference in her life.
I am reading...  SkellIg by David Almond.  A very good story.
I am hoping...  Princeton High School will have a good school option for both of my girls next fall and will take their credits from previous school work done.
I am looking forward to...  being done with my PA license renewal and being done with my taxes!

Around the house...  I moved the rats into Joe and Elly's bedroom.  I got tired of smelling their cage in our small living room.  This seems to be a better arrangement.
One of my favorite things...  green things growing where there has been cold, dark winter for so long!
Highlights from this past week...  We got my father-in-law home now to the new apartment.  My mother-in-law has been sick with a stomach bug, but my father-in-law seems to be doing very well.  My two youngest were both in school all week, although my youngest daughter still has cold symptoms and can't hear for the pressure in her ears!
A peek into my day:
From my back deck.  Much of the snow has gone and a little green is starting to show!
My oldest daughter loves to draw using her Samsung Galaxy

The sun is shining into my kitchen and making everything cheery!

Friday, March 6, 2015

A peek into my day...

Seeing... the beautiful sun shining in the windows!

 Hearing... the tinkling waterworks and hum of my diffuser and the wind blowing outside.
 Smelling... elevation and grapefruit essential oils diffusing, trying to wake me up and make me more cheerfully motivated!

 Tasting... a cup of decaf with ghee
 Feeling... sleepy, hopeful, glad for a partial day without the kiddos.

 Time to clean the ratties' cage and complete my license restoration application so I can eventually work again!

Sunday, March 1, 2015

SWD March 1

FOR TODAY...  March 1, 2015

Outside my window...  there is a couple of inches of snow on the ground. The juncos and finches are enjoying the feeder on my back deck.

I am thinking...  it will be nice when my new computer is set up so I can post pics again!

I am thankful... that I have nothing too pressing to do today because I am warn out!

In the kitchen...  my kitchen needs attention badly as I have been so busy that I am not keeping up with everything, sadly.

I am wearing... church clothes but snuggled into bed to try to get warm.

I am creating...  an appreciation in my family for nutritional foods (although no one much appreciates it right now as they are withdrawing from all the adulterated foods they are used to).

I am wondering...  how I can get on top of the sled of my life instead of continuing to be dragged behind plowing through the snow with my face.

I am reading...  The Shining Company by Rosemary Sutcliff.

I am hoping...  Princeton High School will have a good school option for both of my girls next fall and will take their credits from previous school work done.

I am looking forward to...  resting today and a new women's group I am a part of on Thursday evening.

Around the house...  my two youngest are playing Wii in the living room.  My two oldest are doing homework.

One of my favorite things...  birdfeeders and birds.

Highlights from this past week...  We had our first visit to Chicago to see DD#2's new pediatric gastroenterologist.  We really liked her.  DD#1 is having female problems, so I took her to see a GYN.  After we get lab results tomorrow, we'll hopefully get started on a solution.  DD #3 was sick Monday and Tuesday with a sore throat -viral.  DS was sick all week with an intestinal bug.  I had parent teacher conferences for the two youngest.  They both are doing very well.  We got a new computer from Best Buy!  We moved DH's parents the rest of the way into their new apartment yesterday.  However, my FIL ended up back in the ER and was admitted back in to the hospital for a few days due to heart failure exasperation.  He then needed moved back to the rehab program a few days later.  Hopefully he'll be able to go to his new home in the next couple of weeks.

A few plans for the rest of the week:  get stuff done that is stacking up on me and help my MIL get settled at her new place.